Zebra Safari - the story of an Ehlers-Danlos patient

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Dec 24, 2012

Happy Holidays

at 12/24/2012 05:52:00 PM

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About Me

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My name is Charissa Frank. I am married and have 3 kids and 2 grandkids.I and all my kids have Ehler-Danlos Syndroom (hEDS). I live in Belgium and am the chairperson of the Flemish Patient Foundation for EDS Marfan LD etc. Here I share my life and thoughts as I struggle to combine daily life, family life and EDS. My life in a zebra safari!

I am also a patient expert for the Ehlers-Danlos Society, Patient Coordinator ERN ReCONNET, Boardmember RaDiOrg

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